A Pair of Miracles: Isaac got a job!

Main View Restaurant, North Manchester, Indiana

When your identical twin brother has a job and you don’t, it’s a tough row to hoe. Let’s rephrase that. When your identical twin brother with autism has a job and you have autism, and you don’t have a job yet, it’s super hard to process and understand. 

Last week Isaac started his new job! This has been a long road for both boys. But thanks to Vocational Rehab in  Indiana, the boys are now both in job placements and succeeding. At least for now.

Autism is unpredictable, and while we keep our fingers crossed and are hopeful they will be able to stay in their positions, things come up that could change all that.

But today, we don’t focus on that. Right now we celebrate.  Isaac has a job! This was something I was told long ago that he’d never do. Just look at these miracles now!

Isaiah works at a convenience store/gas station about three mornings a week. And now Isaac is working at a locally owned restaurant. At the gas station, Isaiah cleans and stocks. At the restaurant Isaac does dishes several evenings a week.

Excuse me while I Snoopy dance!

We are thrilled that God has been gracious to us. And the boys are thrilled, too. Things are a lot less stressful around here now. Isaac is no longer upset and moping about  not having a job. With identical twins with cognitive disabilities, who often see themselves as one entity instead of separate human beings, this has been a difficult season for us to handle.

I had no idea parenting adult children would be so challenging. Sometimes I really long for when they were all little. Things were much simpler! Am I the only one?

Oh, and Isaac’s not the only one who  started a new job! Yesterday I attended my first training for my new teaching position as an 8th grade resource teacher at Indian Springs Middle School! I’ll send more details about that later.

In the meantime, check out the twins’ book. It’s about how God proved the doctors wrong. And how there is always hope and grace. Always.

 

Please click to tweet:  Autism grows up: getting a job

The (not so) glamorous life of a writer

Hello, beautiful people!

Today is LAUNCH DAY!

Yep, today is the day my new book, A Pair of Miracles, the story of my twins’ journey with autism, ventures out into the great big world.

(Did you get your copy yet? Huh, huh, huh, did ya, did ya, did ya?)

Okay. Maybe a bit too much coffee this morning???

Since so many people think I lead a glamorous life as a writer, I thought I’d share the run-down of my day so far. (Okay, so most people know I don’t lead a glamorous life, but  it makes good copy, so bear with me.)

6:30 AM — Hit snooze button

7:30 AM — Finally walking upright. Make coffee. Stumble through house looking for the house phone.

7:31 AM — Forget I’m looking for the  house phone. Forget I made coffee. Do hygiene stuff.

7:35 AM — Take laptop to office, look for interview confirmation, get out notes for the radio interview, get distracted by email and forget I’m setting up for a radio interview.

8:00 AM —  Look for house phone. Again. The radio stations always want you on a land line, not your cell phone.

Time out. Let me explain something.

Our house phone is cordless. There are two of them. I can’t find either one. I never, and I mean, never talk on the house phone. I think the last time I spoke on  the house phone was 1999.

8:15 AM — Panic. Wake  up the twins. “Where’s the phone???”

8:20 AM — Find the  phone. Go to office with it. Set the red flashing light outside my office door so twins will know I’m on an interview/recording.

Yes, I actually use this outside my office door. No one in my house understands the words, “Do not disturb, or bang on my door, I’m recording/interviewing.” This visual signal works for everyone but the two cats.

8:31 AM — I suddenly realize the ringer is off on the phone. I DO NOT KNOW  HOW TO TURN THE RINGER ON! This is not a smart phone. This is a clunky land line phone that has no icons. HOW DO I TURN ON THE RINGER! I don’t know how to check to see if the station has already called me. HELP!

8:32 AM — Yell down at the twins for help. “I don’t know how to turn the ringer on, why is it off?? HELP!”

8:33 AM — Isaiah turns the ringer  on. I run back to my office and shut the door, and try to slow down my breathing.

8:35 AM — The radio  station calls. On the air. Do I sound ridiculous? Do I sound like a know-it-all? Do they like me? Huh, huh, huh, do they, do they, do they???? Man am I thirsty. I forgot to bring water into the office. My mouth is full of cotton. Breathe, Karla, breathe. But not into the phone. Do. Not. Heavy. Breathe. Into. The. Phone. People do not want to hear heavy breathing in their car on the way to work. Breathe sideways. Smile. Put a smile in your voice. They can hear the smile…Slow. Down…

Somehow I survived the first interview of the day. I hope the radio station did. And the listeners. Especially the listeners.

I have to be honest. Interviews are hard for me. I think they are for most people. Writers, especially, would rather write words than say them out loud. Okay, maybe not all writers, but this one is much more clever when writing.

What? Still too much coffee?

After the interview I sent the twins to McD’s on their golf cart. They love doing this. We celebrated with a launch day breakfast and (more) coffee. Okay, fine, frappes. We had caramel frappes. There. I said it.

And here we are. I have more interviews today. I have located the phone. My papers are all lined up in a row so I don’t miss a call.

Problem is, living with autism as I do,  the phone could disappear in a heartbeat. And I could still be doing some heavy breathing.

Life isn’t glamorous. But it’s certainly never boring.

Please tweet:

Click: The (not so) glamorous writer launches a book!

It’s almost time for lunch, er, I mean, launch!

You know me. I’m always thinking food…

But seriously, tomorrow is Launch Day!

:::Cue balloons and music:::

A Pair of Miracles will be available everywhere books are sold all over the world.

Wow. Think of it.

:::Karla sits and ponders:::

Actually, I can’t wrap my mind around that internationally-available thing. So, I’m going to have a live feed pajama party tomorrow night and you’re invited!

I will give away four copies of this book tomorrow night at my Facebook Live launch party.

Besides all that, I’d love to have you join me.

See you there!!!

Jake Says:

“I hope everyone likes my paw-jamas!”

Frankie says:

“The party is going to be paw-sitively paw-some!

Pip says:

“I’ll bring the pup-corn!”

Chevy says:

“Did somebody say lunch?”

(Chevy needs to work on being punny…)

Please tweet:

It’s a paw-some launch paw-ty!

Help for Indiana Schools: Autism Resources

It’s frustrating as a parent of children with autism to know there are excellent resources out there but that Indiana schools fail to access them.

In too many public schools, autism is an annoyance, especially at the secondary level. This is partly due to not addressing the needs of students with autism at the elementary level.

If students are reached very early with evidence-based interventions, many of the issues for students who respond to therapy, phase out by the time they are in secondary school. There are certain things a student must be able to do in order to be successful at the secondary level, and one of them is the  ability to handle anxiety. Others include being able to attend to a task, take directions that they may not want to comply with, and be able to respond to conflict in socially acceptable ways.

Notice that most of these issues aren’t academic. They are social and emotional. Still, if a child with autism is to be guaranteed access to a free and appropriate education, they aren’t able to access it if they can’t get past the social and emotional piece. Yet, during IEP meetings, schools argue that these  are non-academic issues and schools are not required to address them.

What I’ve experienced in Indiana is a lack of genuine compassion and interest in helping students with autism succeed. I’ve also experienced a shameful scarcity of school attention towards helping students struggling above the precarious precipice of diploma track vs. certificate of completion. (I heard a rumor that “no diploma for people with low I.Q.s, etc.,” could be changing for Indiana but I’m not holding my breath.) Too often I’ve been told or have overheard teachers and paraprofessionals say, “don’t bother wasting your time helping that one, they’re taking them off diploma track anyway.”

Special Education teachers burn out because of lack of administrative support. They are given over-sized case loads that result in students falling through academic cracks. They’re not provided with materials, resources, or training for meeting the students’ needs. The mantra is to do the bare minimum of intervention so that schools can legally pocket the rest of the special education monies. Students in dire need of 1:1 aides are not provided them. Instead, one “instructional assistant” or “para-professional” is given to classrooms, and only maybe 1 or 2 per grade if that. No one student is given enough attention and support. Sometimes, high school students still need 1:1 support. Need is the operative word, and is the word that schools interpret any way they wish.

And where is the accountability for special education dollars? Why is our local area program bankrupt? The money wasn’t spent on my twins with autism, I can tell you that. (They are 22 now.) Was the money (millions) spent on teacher training in my school system? No. Was the money spent on 1:1 paraprofessionals for students with autism in my school system? No. Was it spent on administrative conferences and trips? Yes. Why are we not allowed to see how the money is spent?

Special Education teachers are under strict orders not to offer any services outside of the bare minimum. And because teachers want to keep their jobs, they do what they’re told. If you want services, you, the parent, have to bring them to the table. Remember, the school is not obligated in any way to go above and beyond anything but minimum. This is how they interpret and practice “free and appropriate.” Period.

Not all schools are turning their backs on autism. I hope to find these schools and highlight what they’re doing right. (If you know of one, please let me know in the comments below.) But far too many are doing it wrong. Far too many simply don’t care. What’s more important to many schools is keeping ISTEP scores high so they can attract high-scoring students to their schools via the voucher program.

If your student doesn’t make the administration look good, you don’t matter. You’re an inconvenient annoyance. The school hopes parents will pull the student out of school by the end of the year. If the student has already attended X number of days, they get to count the student for the full year and get to pocket the special education monies without spending a dime on support.

Parents are ill-informed of their recourse options. Even though the state law requires that parents be given the “Procedural Safeguards” brochure at the IEP meetings, few parents have the energy to read and digest it. Most of their energy is poured into getting their student through one more day, working their own jobs, and dealing with their other children. This brochure usually isn’t explained by anyone in the IEP meeting. And parents with low-functioning abilities are too embarrassed to have anyone explain it to them.

Here are some resources every parent with a child with disabilities living in Indiana should use:

Indiana Resource Center for Autism. This organization provides incredible training for teachers working with students with autism. Why aren’t all the schools in Indiana accessing this? Is it time to ask our legislators to  mandate this training for our Special Education teachers? There are also great resources for parents, including a Lending Library and a few helpful videos:

 

Another excellent help for parents when working with public schools is In*Source.  If you’re not getting what you believe your child needs in school, and every IEP meeting is a war zone, this organization can help you. They provide trained support advocates to go with you into the IEP meeting and help you navigate the laws to get your child’s needs met. I am a trained In*Source advocate, but now that I’m a teacher, am unable to be part of this service. These advocates are volunteers, and are passionate about helping kids with disabilities get what they need in public school. Don’t hesitate to contact them for help.

Other (Sort of) Helpful Autism Resources in Indiana:

Autism Society of Indiana

Autism Speaks

The reason I call these “sort of” resources is that they do provide information and fund-raising types of things, but not much practical hands-on help for families living in the trenches. However, I’m not belittling what they do. My focus for this post is for helping parents get what they need for their child at public school.

I love helping parents find answers. What questions do you have about autism, disabilities or accessing public school services? Leave your questions and comments below and I’ll get back to you as soon as possible!  Do you know of a school that does autism intervention right? Please tell me so I can feature them on my blog!

My newest book is available now for pre-order at the following locations. I am so excited and the twins can’t wait to meet you! Our Book Talk will be August 3rd at Manchester Public Library. I will post more information as the date draws near!

Amazon

Barnes & Noble

Indie Bound

Powell’s

“Help for Indiana Schools: Autism Resources” first appeared on Karla Akins’ blog at KarlaAkins.com

Autism: Not Different Enough

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Click to Buy

When I read Gloria Doty’s book about her daughter with autism, I felt a great kinship with her. As you know, my twin adult sons also have a diagnosis of autism. As we venture into adulthood with them, I found this book an absolute comfort. It helped me realize that I’m not the only one experiencing all these new adventures in many of the same ways.

If you know someone with a child with autism, I hope you’ll share this interview with them. It’s such an important one, and helps parents understand the importance of getting guardianship for their adult child with autism.

This is a beautiful book, and I enjoyed reading it. It reads fast, and it feels like you’re sitting with Gloria and having a chat. I loved it so much I had to do an interview. What follows is the delightful time I had with Gloria discussing this gem of a book.

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