Hallelujah! We have poop!

hallelujahHey, when you live with autism, you get excited about some strange stuff.

This week I’m jumping for joy about poop.

I’m not saying that when Isaiah woke me up first thing Friday with — “Mom! I pooped in the hat!” that it’s my favorite way to wake up.

But let me tell you, it was a long-awaited event.

hat

The Hat

Isaiah has been sick since October. We haven’t been able to figure out what’s going on. He’s been losing weight and his stools are very loose. He gets tired easy. The next step in pinning down a diagnosis was to get a stool sample. Which he refused to give us.

He’s eighteen. How do I force him to give me poop?

He was terrified of pooping in “the hat.” I called the nurse and asked for an alternative method. Nothing doing. It had to go in the hat and I had to scoop it out and put it in four different vials.

fecalvial

Weeks later there was still no poop.

We had an intervention. We sat him down and explained to him that he MUST poop in the hat. His twin brother told him that he wanted him to go back to school with him (he is in home-bound education until we clear this up).

I don’t know how, or why, but the next morning — HE DID IT!

And I had the pleasure of, er, collecting it.

disgustedface

So now we wait for news back. Hopefully it will reveal answers. Otherwise he has to have a endoscopy and if you know anything about autism, you know that it will be terrifying for him.

Here are some pics of his Grandma helping him endure another scan. He’s had three. Each time they have to put in an IV. And he’s terrified of them.

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How do you help your child with disabilities endure an illness? How do you cope?

1 reply
  1. Kathleen Rouser
    Kathleen Rouser says:

    Been through the stool sample thing with one of my kids for similar
    symptoms, but wasn’t dealing with autism issues on top of it.

    Through the months of my son not feeling well, we prayed a lot!
    That and time in God’s word was what got us through it . . . through
    the doctors, dietary changes, treatments, etc

    Reply

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